whatUseek Collection Sites (submit a site ):
Hair salon products and services - Hair salon offering help for all hair types, to thin, nappy, kinky, short. Get professional help today. Get help with Trichotillomania.
whatUseek Directory Site Listings:
Contact a Family - Information about this organization as well as the CaF directory of specific conditions and rare disorders. Also details about the Rare Disorders Alliance - UK.
Fibrous Dysplasia Support Online - For those seeking support and information concerning the rare bone diseases: fibrous dysplasia, McCune Albright Syndrome and Cherubism.
Human Growth Foundation - Information about growth-related disorders through education, research, and advocacy. Member driven organization.
International Rare Disease Support Network - A community providing more than a 1000 different links to support groups for the people of all nations.
National Organization for Rare Disorders, Inc. - Information about NORD, its programs, special events and the variety of services offered. Includes a rare disease, organization and orphan drug database. Diseases are listed alphabetically for easy searching.
Nomid /Cinca - Resource for parents and patients suffering from Neonatal Onset Multi-inflammatory Disease Chronic, or Infantile, Neurologic, Cutaneous and Articular syndrome. Site maintained by patients, parents and friends for their counterparts worldwide. Email support group at eGroups.
Office of Rare Diseases - Information on more than 6000 rare diseases, including current research, publications from scientific and medical journals, completed research, ongoing studies, and patient support groups.
Proximal Femaral Focal Deficiency - This website about Michael was done so that other PFFD families can see his photos and doctors can view his xrays.
Spinal AVM Support Group - Information for those whom have been touched by this disease. Includes message board, membership and contact details.
Tetrahydrobiopterin Home Page - Information on structure, biosynthesis and pathophysiology of BH4 - database of BH4 deficiencies - database of mutations - screening for BH4 deficiency. These are just a few of the topics discussed.
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