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whatUseek Directory Site Listings:
- Information about a foundation dedicated to increasing awareness of Sanfilippo Syndrome and raising funds to support research aimed at finding a cure. Includes a newsletter.
MPS III: Sanfilippo Syndrome
- Information, including the causes, different forms, the inheritance and how the disorder progresses.
NORD - Sanfilippo Syndrome
- Offers a list of synonyms, a general discussion and further resources.
- Offers a definition, the epidemiology, pathogenesis, clinical features, investigation and management.
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