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Tuberous_Sclerosis
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whatUseek Directory Site Listings:
 
Children's Hospital Medical Center of Cincinnati Tuberous Sclerosis Program - Organized in 1993 to assist in the medical care of children and adults with tuberous sclerosis.
 
Kolten's Tuberous Sclerosis Page - Kolten's story about living with this disease. The daily seizures that took over his life and the amazing surgery that gave it back to him.
 
Marian's Life with Tuberous Sclerosis - Marian's story. Information about the disease, pictures, contacts, medicine, links.
 
NORD - Tuberous Sclerosis - Offers alternative names, a general discussion and further resources.
 
National Library of Medicine - A list of synonyms, a summary and major features of tuberous sclerosis.
 
National Tuberous Sclerosis Association (NTSA) - The predominant neurologic manifestations are mental retardation, epileptic seizures and psychiatric and behavioral problems.
 
Pediatric Database - A definition of tuberous sclerosis, followed by the epidemiology, pathogenesis, clinical features, investigations and management.
 
TSCTalk - Mailing list and discussion boards for patients and professionals.
 
The Global Tuberous Sclerosis Information Link - A free resource dedicated to tuberous sclerosis, ts, tsc, epilepsy and related topics if interest.
 
Tuberous Sclerosis - A short information sheet on this disease compiled by NINDS, the National Institute of Neurological Disorders and Stroke.
 
Tuberous Sclerosis - Lisa's Site - An incurable genetic condition that causes tumors to grow in various places in the body.
 
Tuberous Sclerosis Association - "Supporting sufferers, promoting awareness, and seeking the causes and best possible management of Tuberous Sclerosis." Full of resources and information on Tuberous Sclerosis, plus contact details.
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