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whatUseek Directory Site Listings:
NORD - Sturge Weber Syndrome
- Offers a list of synonyms, a general discussion and further resources.
Pediatric Database
- A definition of Sturge-Weber syndrome, the epidemiology, pathogenesis, pathology, clinical features, investigations and management.
Stephie's Corner
- A mother's journal of her daughter's life with Sturge - Weber syndrome. The site highlights the personal aspects of the syndrome and how it affects daily life.
The Sturge-Weber Foundation
- A support site for individuals and professionals dealing with Sturge-Weber syndrome, port-wine stains and Klippel Trenaunay. The Foundation acts as clearing house for information and a focus for research.
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