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Marfan_Syndrome
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whatUseek Directory Site Listings:
Bone Jones 00 Marfan Webpage
- Learn about this disorder through the eyes of someone who has it. Includes an email support group.
Canadian Marfan Association
- Information about Marfan syndrome, articles, events, Marfan patient survey, products.
Dr. Chow's Marfan Survey
- Research on the pros and cons of heart surgery for people with Marfan Syndrome.
Jeanette Navia's Marfan Life Website
- Including lists of penpals and other ways to connect with the community as well as information about the Syndrome.
Marfan Association UK
- The support association in the UK for this genetic condition Marfan Syndrome which can affect the heart, eyes and connective tissue.
Marfan Syndrome
- Bradley Radecki's personal page with information about Marfan Syndrome and how it has affected him.
Marfan Syndrome
- Bradley Radecki's personal page with information about Marfan Syndrome and how it has affected him.
Marfan Syndrome
- Bradley Radecki's personal page with information about Marfan Syndrome and how it has affected him.
Marfan Syndrome Awareness
- This site is designed to provide information about Marfan Syndrome, and related medical problems.
Marfan Syndrome, Children's Heart Institute.
- Dr. Abdallah uses colorful graphics and animated slide shows to help explain Marfan Syndrome in plain language.
Marfan Syndrome: Does Diet Play a Role?
- Reviews the possible role of nutrition in this syndrome. Site may also be helpful for related disorders.
Marfan Syndrome: Life and Issues
- Personal site by which describes the pathology and gives a bit of advice.
Marfan's Syndrome
- This is a case study of the diagnosis and treatment of a basketball player with Marfan Syndrome.
Marfan-List
- This is a forum for people interested in Marfan Syndrome.
Marfan-List
- This is a forum for people interested in Marfan Syndrome.
National Marfan Foundation
- Providing accurate and timely information about Marfan disorder to patients, family members and physicians.
Slovak Marfan Association
- The association provides a network of patients, relatives and doctors in Slovakia, informs and helps patients to improve the medical care.
Stanford University Marfan Center
- Research, testing and care for Marfan Syndrome and related connective tissue disorders, with a list of FAQs.
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