Conditions and Diseases
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whatUseek Directory Site Listings:
Children of the Moon
- A portal site that provides an online community for children, teens and adults with xeroderma pigmentosum.
NORD - Xeroderma Pigmentosum
- Offers alternative names, a general discussion and resources.
- A definition of xeroderma pigmentosum with the epidemiology, pathogenesis, clinical features, investigation and management.
XP Support Group
- Xeroderma Pigmentosum Support Group - a UK charitable Trust founded in 1999 by parents of a child with XP, to support patient families in the UK and promote research related to this rare, genetic disorder.
- An article about this disorder in English and Italian along with some images.
Xeroderma Pigmentosum Society
- Resource for information about the disease and about the not-for-profit support organization devoted to supporting patients and families and promoting research. Links, contact information, XP Society news about fund raising events and the unique Camp Sundown program.
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