Conditions and Diseases
Peripheral Nervous System
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whatUseek Directory Site Listings:
Daniels Neurofibromatosis page
- A child living with neurofibromatosis and optic glioma with links.
Diagnostic and Management Criteria for Neurofibromatosis 1 and 2 - Revised
- Revised criteria published in JAMA in 1997, by the National Neurofibromatosis Foundation Clinical Care Advisory Board.
- A description of Neurofibromatosis, followed by links to research articles, treatment methods, clinical trials and non-profit organizations.
March of Dimes
- A fact sheet about the Neurofibromatoses.
- Information page compiled by NINDS, the National Institute of Neurological Disorders and Stroke.
Neurofibromatosis Clinic at M. D. Anderson Cancer Center
- Information about neurofibromatosis and details of Center which provides diagnosis, treatment, patient education, and relevant research.
Neurofibromatosis Clinics Association Volunteer Opportunities
- Details of many ways to volunteer to help the Neurofibromatosis Clinics Association.
Neurofibromatosis Clinics Association, Inc.
- A non-profit organization for people with NF and their families.
- Links to European neurofibromatosis laygroups.
- Links, with reviews, to information about neurofibromatosis 1 (Von Recklinghausen's disease. Personal pages.
Neurofibromatosis Resources - Photographs
- Photos of cafe au lait spots and external neurofibroma tumors.
Neurofibromatosis(Von Recklinghausen's disease)
- A review of the most important aspects on physical examination, classification and treatment, for medical students.
- Support and information for those with Neurofibromatosis.
The NF2Crew Website
- On-line discussion group for people with neurofibromatosis 2.
The National Neurofibromatosis Foundation (NNFF)
- Comprehensive information sponsored by the National Neurofibromatosis Foundation for people with NF, and links to other sites.
- A definition, signs, symptoms and treatment of NF1 and NF2, prenatal testing and research.
The Neurofibromatosis Association UK
- Information about the UK Association, including family support, membership details and local group contacts.
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