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Arlene Brandeis' Intuitive Art
- An expression of the loss of family members to genetic anomalies including Ehlers-Danlos Syndrome, Acute Intermittent Porphyria, and Hypolipoproteinemia. Information provided about each.
Canadian Ehlers-Danlos Association
- Working together to provide assistance, support and resources for people living with this rare genetic disorder.
Damaged - A Journal
- The personal diary of a young woman learning to live with Ehlers Danlos Syndrome.
EDS Today
- A bi-annual publication for, by, and about people with Ehlers Danlos Syndrome.
Ehlers Danlos Foundation of New Zealand
- Support for sufferers of the Ehlers-Danlos Syndrome and related Hypermobility Syndrome and provides some information for the medical profession and general public.
Ehlers-Danlos Hope
- Personal plea for help from a sufferer in Syria.
Ehlers-Danlos National Foundation
- Provides support and information to those affected by Ehlers-Danlos syndrome and their families.
Ehlers-Danlos Syndrome - HealthlinkUSA
- A wide range of helpful Ehlers-danlos Syndrome information concerning treatment, prevention, diagnosis, email groups, support groups, and personal stories.
Ehlers-Danlos Syndrome Information
- A brief description of EDS and how it is inherited. Edited by Frederick Matsen III MD Chairman, Department of Orthopaedics, University of Washington, Seattle, USA.
Ehlers-Danlos Syndrome Support Group
- This site offers extensive information for patients and doctors, plus links.
NORD - Ehlers-Danlos Syndrome
- EDS disease information from the National Organization for Rare Disorders.
New York / New Jersey Ehlers-Danlos and Hypermobility
- Details about this support, message and discussion center. Includes a search feature and posting a message.
Page Wise Inc
- An article about ehlers danlos syndrome with a description, details of where the name came from and brief look at each of the different types.
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