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whatUseek Directory Site Listings:
Foundation for Sarcoidosis Research - A non profit organisation dedicated to finding a cure for sarcoidosis. Board members include well known faces such as Karen Duffy and Andrea Wilson. Site also includes detailed information on sarcoidosis, links to sarcoidosis specialists in the USA and internationally, and some worthy links.
Joseph McLaurin's Sarcoidosis Page - An extensive list of support organizations in the USA, and a list of related links.
Let's Breathe - Promotes public awareness of sarcoidosis to educate patients, families and friends and the medical community. Includes clinical details, support groups, sarcoid links, newsletter and sarcoidosis related events worldwide.
Life and Breath Foundation: In Search of a Cure for Sarcoidosis - Through its fundraising and educational activities, this foundation is committed to the research of sarcoidosis in the hope of finding a cure.
MEDLINEplus: Sarcoidosis - Links to information and overviews on the disease from several reputable sources such as the American Lung Association, as well as links to current clinical drug trials and research being conducted.
MUSC Sarcoidosis Center - The Medical University of South Carolina (USA) Sarcoidosis Centre evaluates and provides treatment plans to patients who are referred by physicians throughout the state. Site also has disease description, appointment information, breaking news, physician directory, clinical trials, and other relevant information.
NORD - Sarcoidosis - Information from the National Organisation of Rare Diseases. Very brief, but you are able to buy the full document from NORD which is a non profit organisation and uses that money for research. Site also contains links.
National Institutes of Health: Sarcoidosis - Excellent publication available for patients to read online. Includes very descriptive information on tests with pictures of various sarcoid complications such as erythema nodosum on the legs.
National Sarcoidosis Resource Center - US-based organisation disseminating sarcoidosis news and information worldwide. Includes newsletter, images, resource guide, support group and order form for purchasing videos, books and sarcoidosis awareness ribbons.
Neurosarcoidosis - A detailed guide to this rare manefestation of sarcoidosis. Includes forum, support group, links, tests, medications, and detailed information on this rare disease.
PulmonologyChannel: Sarcoidosis - Quite detailed information on the disease, diagnosis, symptoms and treatment of sarcoid, as well as a "Find a Pulmonologist" feature and links to more detailed information.
Sarcoid Connection - Provides information and support to people with sarcoidosis, their families, and friends. ICQ user list and chat forum, real life support group in the Bath-Brunswick Maine area, and a new page called Sarcoidians Sharing, which contains stories, poems, pics, recipes, health tips, inspirational messages and more as submitted by others with sarcoidosis.
Sarcoidnet: The London Ontario Sarcoidosis Information Connection - Quite detailed information on sarcoidosis and its various manifestations, treatments and current clinical trials, recent research, chat room, writers personal story and links to both research and personal pages. Online survey for Canadians.
Sarcoidosis - Well thought out list of links, compiled with patients in mind, with links to disease descriptions, medical assistance and information, support resources and message boards.
Sarcoidosis - Well thought out list of links, compiled with patients in mind, with links to disease descriptions, medical assistance and information, support resources and message boards.
Sarcoidosis - Well thought out list of links, compiled with patients in mind, with links to disease descriptions, medical assistance and information, support resources and message boards.
Sarcoidosis Center - Hosted by a pulmonologist whose main interest is sarcoidosis, this site is designed for both patient and physician with an aim to link the sarcoid community for improved communication to share resources and knowledge. Features detailed explanations of sarcoidosis, references, FAQ, literature, names and address for medical and emotional support, as well as relevant internet links.
Sarcoidosis Family Foundation - Provides general information on the disease, links to the delphi forum, chats, other sites and a page on actress/model Karen Duffy.
Sarcoidosis Helpline - This site offers a lot of support to those who need a shoulder to lean on. Designed for the patient this site has detailed information on the disease, as well as newsletters, family and daily life support, humor, inspiration, and a weekly chat forum in their own chat room.
Sarcoidosis Online Sites - A wealth of information set up to provide the sarcoid patient with every tool they would need to understand and be kept well informed with their illness. Resources include detailed explanation of sarcoidosis and treatments, professional directory of physicians who deal with sarcoidosis, lists of support groups, patient to patient forums and live chat, newsletters and links to other reputable sites.
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