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whatUseek Directory Site Listings:
Alex and Matt Pearl
- Personal stories of two children fighting Fanconi Anemia.
B Positive, Inc.
- A charitable organization providing assistance to children with Fanconi Anemia within the St. Louis and St. Charles Missouri metro areas.
Diamond Blackfan Anemia
- Information and support for patients and families with this type of anemia in the United Kingdom; Details on research, treatments and charitable aims of the group.
Diamond Blackfan Anemia
- Information and support for patients and families with this type of anemia in the United Kingdom; Details on research, treatments and charitable aims of the group.
Diamond-Blackfan Syndrome
- A definition, epidemiology, clinical features, complications, investigations and management.
Fanconi Anaemia
- A UK site dedicated to sufferers of this condition, it explains about what FA is, the treatments, medical information and a kids area.
Fanconi Anaemia
- A UK site dedicated to sufferers of this condition, it explains about what FA is, the treatments, medical information and a kids area.
Fanconi Anemia Fact Sheet
- Information on this disease and who is affected.
Fanconi Anemia Fact Sheet - Jewish Genetic Diseases
- Fact Sheet on this anemia with emphasis on FANC-C variant of disease being a Jewish Genetic Diseases, including support resources.
Fanconi Anemia Fact Sheet - University of Pittsburgh
- Brochure about its diagnosis and treatment published by the University of Pittsburgh Department of Human Genetics, including links to support and diagnosis resources.
Fanconi Anemia Research Fund
- To find effective treatments and a cure for this disease, and to provide education and support services to affected families worldwide.
Fanconi Anemia Web
- An informational site for this disorder.
Fanconi Anemia: A Handbook for Families and Their Physicians
- Gives basic information in plain language, about understanding and coping with this serious disorder also known as Fanconi's anemia.
Fanconi Anemia: the Frohnmayer Family's Experience
- The personal story of David and Lynn Frohnmayer whose three daughters were born with Fanconi anemia, an inherited, usually fatal illness.
Fanconi Canada
- Canadian charity whose mission is to fund medical research into finding a cure for Fanconi Anemia and to serve as a support network for affected Canadian families.
Hope for Henry
- This web site is dedicated to helping people learn more about what a special young man Henry is and to educate everyone about the disease he is fighting, Fanconi anemia.
International Fanconi Anemia Registry
- A study being done on patients with fanconi anemia to obtain clinical and genetic information. Genetic counseling and dietary instruction will be provided.
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