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Porphyrias
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whatUseek Directory Site Listings:
Acute Intermittent Porphyria Forum
- Information and links about Porph. Includes registration form for an email list.
Canadian Porphyria Foundation
- Mission statement, objectives of the organization, newsletters and safe and unsafe drugs. Also: A Guide to Porphyria - a complete booklet of information.
Diagnosing the Porphyrias
- An article by Thomas G. DeLoughery, Associate Professor of Medicine.
EPP
- Short for Erythropoetic ProtoPorhyria, which is a rare metabolic disease. A personal site about this disorder, one of the family of porphyrias.
HealthCentral - Porphyria
- General overview of this rare disease.
King George II and Porphyria
- Talks about the symptoms of porphyria affecting King George III who ruled England during the American revolution.
Me and AIP
- Acute Intermittent Porphyria. A personal experience with this disease touching on nutrition, diet, doctors and a healthier safer chemically free environment.
Porphgroup
- An email group at eGroups dealing with the metabolic disease porphyria.
Porphyria
- A look at the different types of these disease and some of their characteristics.
Porphyria
- A look at the different types of these disease and some of their characteristics.
Porphyria Page
- A patient guide for all people with this disorder. Compiled by Professor Michael Moore.
Porphyria: The Unknown Disease
- Genetic metabolic disorder. Overview of types, testing and diagnosis, and links.
Porphyria: The Woman Who Has The Vampire Disease
- Review by the FindArticles.com on this book on porphyria written by Lenore B. Weinstein.
Porphyrias
- A brief look at the two major types, the symptoms and an example is given.
Porphyrias: Diagnosis and Treatment
- Clinical manifestations, diagnosis, etiology and treatment of six types of porphyrias are discussed.
Porphyrics Encouraging Group Support - PEGS
- Information about porphyria, acute attacks, skin care, porphyria in children and a list of safe and unsafe drugs.
Prophyria in Charlottesville
- An e-mail sent to Professor Huskey from a person working on a rescue squad.
The American Porphyria Foundation
- Non-profit organization advancing awareness, research, and treatment of Porphyria. Fact sheets and links to related resources.
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