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Facial_Differences
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Categories:
Apert Syndrome (10) Sagittal Synostosis (3)
Cleft Lip and Palate (18) Smith-Magenis Syndrome *(4)
Craniosynostosis (4) Stickler's Syndrome (4)
Langer-Giedion Syndrome (2) Treacher Collins Syndrome (5)
Parry-Rombergs Syndrome (4)  
 
 

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whatUseek Directory Site Listings:
 
AboutFace - International organization providing information and emotional support to individuals and their families affected by facial differences and disfigurements.
 
Acne Support Group - Information and support on acne, including top ten tips, beauty tips and problems.
 
Arhinia and Other Craniofacial Anomalies - Dedicated to arhinia (absence of the nose) and other craniofacial anomalies.
 
Birthmark Support Group - From the UK-based group, giving information about birthmarks, the process of getting help, treatment centres, newsletters, diaries of events and links to other associated support groups.
 
Cancer Of The Eye Linkline (CELL) - UK-based helpline for people whose lives are affected by loss of an eye through cancer or trauma. Support, information and links.
 
Changing Faces - UK-based charity giving support and information to people with facial disfigurement and other facial differences and their families, and the professionals who work with them.
 
Children's Craniofacial Association - A national, nonprofit organization, headquartered in Dallas, Texas, dedicated to improving the quality of life for individuals with facial disfigurements and their families.
 
Children's Craniofacial Association - A national, nonprofit organization, headquartered in Dallas, Texas, dedicated to improving the quality of life for individuals with facial disfigurements and their families.
 
Crouzon Support Network - A network designed to offer support to individuals and families dealing with Crouzon's Syndrome and other craniofacial anomalies.
 
Disfigurement Guidance Centre - Support and information for people with facial and other disfigurements via post or telephone. Details of International Skin Laser Directory and booklets. Based in Scotland.
 
FACES: The National Craniofacial Association - Support and resources concerning craniofacial disorders including information on 28 specific craniofacial disorders. Financial assistance for secondary costs. USA based organization.
 
Face the Future - Information and resources for people living with a facial disfigurement in the North East of England.
 
John Hopkins Center for Craniofacial Development and Disorders - Provides information on research, education and clinical care for researchers and physicians. An educational interactive resource for families. Details activies at the Center.
 
Let's Face It UK - Friendship and support for people who have a facial difference.
 
Let's Face It USA - A nonprofit network for people with facial difference, their families, friends and professionals. Links professionals, patients, parents and communities to each other and to networks, books and articles.
 
Moebius Syndrome - Moebius Syndrome support, information and resource site.
 
Sincere Meditations - Site tells a story of overcoming adversities.
 
Support Works Online - Resources to find or form support groups related to facial difference. Information on medical research.
 
The Craniofacial Foundation of Arizona - Provides information and support for people with head and face disfigurement. Happy Faces Family Network is a non-medical organization of volunteers, aiming to raise public awareness of craniofacial problems, promoting community acceptance and understanding.
 
The Craniofacial Society of Great Britain and Ireland - Information about the society, which is a multidisciplinary forum for specialists.
 
 

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