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Facial_Differences
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Categories:
Apert Syndrome
(10)
Sagittal Synostosis
(3)
Cleft Lip and Palate
(18)
Smith-Magenis Syndrome
*(4)
Craniosynostosis
(4)
Stickler's Syndrome
(4)
Langer-Giedion Syndrome
(2)
Treacher Collins Syndrome
(5)
Parry-Rombergs Syndrome
(4)
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whatUseek Directory Site Listings:
AboutFace
- International organization providing information and emotional support to individuals and their families affected by facial differences and disfigurements.
Acne Support Group
- Information and support on acne, including top ten tips, beauty tips and problems.
Arhinia and Other Craniofacial Anomalies
- Dedicated to arhinia (absence of the nose) and other craniofacial anomalies.
Birthmark Support Group
- From the UK-based group, giving information about birthmarks, the process of getting help, treatment centres, newsletters, diaries of events and links to other associated support groups.
Cancer Of The Eye Linkline (CELL)
- UK-based helpline for people whose lives are affected by loss of an eye through cancer or trauma. Support, information and links.
Changing Faces
- UK-based charity giving support and information to people with facial disfigurement and other facial differences and their families, and the professionals who work with them.
Children's Craniofacial Association
- A national, nonprofit organization, headquartered in Dallas, Texas, dedicated to improving the quality of life for individuals with facial disfigurements and their families.
Children's Craniofacial Association
- A national, nonprofit organization, headquartered in Dallas, Texas, dedicated to improving the quality of life for individuals with facial disfigurements and their families.
Crouzon Support Network
- A network designed to offer support to individuals and families dealing with Crouzon's Syndrome and other craniofacial anomalies.
Disfigurement Guidance Centre
- Support and information for people with facial and other disfigurements via post or telephone. Details of International Skin Laser Directory and booklets. Based in Scotland.
FACES: The National Craniofacial Association
- Support and resources concerning craniofacial disorders including information on 28 specific craniofacial disorders. Financial assistance for secondary costs. USA based organization.
Face the Future
- Information and resources for people living with a facial disfigurement in the North East of England.
John Hopkins Center for Craniofacial Development and Disorders
- Provides information on research, education and clinical care for researchers and physicians. An educational interactive resource for families. Details activies at the Center.
Let's Face It UK
- Friendship and support for people who have a facial difference.
Let's Face It USA
- A nonprofit network for people with facial difference, their families, friends and professionals. Links professionals, patients, parents and communities to each other and to networks, books and articles.
Moebius Syndrome
- Moebius Syndrome support, information and resource site.
Sincere Meditations
- Site tells a story of overcoming adversities.
Support Works Online
- Resources to find or form support groups related to facial difference. Information on medical research.
The Craniofacial Foundation of Arizona
- Provides information and support for people with head and face disfigurement. Happy Faces Family Network is a non-medical organization of volunteers, aiming to raise public awareness of craniofacial problems, promoting community acceptance and understanding.
The Craniofacial Society of Great Britain and Ireland
- Information about the society, which is a multidisciplinary forum for specialists.
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