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Spinal_Muscular_Atrophy
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whatUseek Directory Site Listings:
 
Families of SMA (Spinal Muscular Atrophy) - International support group and resource center for this disease, includes current research.
 
Families of Spinal Muscular Atrophy Canada - Canadian charity supports research into a cure for SMA.
 
FightSMA - Web site promoting public awareness for spinal muscular atrophy.
 
GeneClinics SMA Information Page - This page provides a very good overview of SMA, its genetics, clinical presentation and testing. It is written by one of the nation's leading experts in SMA research and genetic testing.
 
Ilsa's SMA Resources - A detailed description, news and links with information about Spinal Muscular Atrophy. A personal story of a baby, Ilsa.
 
SMA Angels Support Site - A place for people to find support for Spinal Muscular Atrophy (SMA) / Werdnig-Hoffman.
 
SMA2 Ian Paul - I am two years old and I have SMA2.
 
Spinal Muscular Atrophy : Theo's story - We have lost our son Theo through SMA. This site is bilingual English/French.
 
Theo's Story with SMA - A personal story of a family with a son Theo, suffering from Spinal Muscular Atrophy. Site also in French.
 
Tori's Buddies - Canadian Chapter of Andrew's Buddies, fighting Spinal Muscular Atrophy SMA.
 
Washington University of St. Louis: Neuromuscular - Provides detailed medical/genetic information for a variety of neuromuscular disorders. Primarily intended for medical professionals and is very technical.
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