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Hydrocephalus Association - Non-profit support and advocacy group information on resources and education for families and individuals.
 
Madi's Fund for Hydrocephalus Research - Fund is used to promote hydrocephalus research and provide some assistance for families who have children hospitalized at Fletcher Allen Health Care. Rutland, VT
 
National Hydrocephalus Foundation, Inc. - NHF goals are to facilitate a network for those affected by hydrocephalus, increase public awareness, and give moral support. Along with advocating research for the cause and prevention of this disorder.
 
Society for Research into Hydrocephalus - Society advancing education and research studies. Worldwide membership information, meeting schedule and highlights. Durham, England
 
The Hydrocephalus Foundation, Inc. - Non-profit support organization provides information and resources for patients and families affected by hydrocephalus. Saugus, MA
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