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Hydranencephaly
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Hydrocephalus
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whatUseek Directory Site Listings:
Doug Fogg's Cyberplace
- Introduction to the family, photos, and personal invitation to share information with other parents about hydranencephaly and their experiences with their ten year old son, who died 5/31/01.
Fetal Hydranencephaly
- Medical research presentations of five case studies. Diagrams and ultrasound photographs included.
Health Link - Hydranencephaly
- Overview of the rare condition in which the brain's cerebral hemispheres are absent and replaced by sacs filled with cerebrospinal fluid.
Hydranencephaly
- Information sheet compiled by NINDS, the National Institute of Neurological Disorders and Stroke.
Hydranencephaly Fact Sheet
- Brief description of condition and prognosis. Resources and online information provided.
Rachel's World
- Personal story and photos of a family's love and care for Rachel who was born seven years ago with hydranencephaly.
Rays of Sunshine
- Information about hydranencephaly and related conditions. Personal stories of children and families. Equipment, hospice, and medical directory available.
eGroups : Hydranencephaly
- Support group list for parents, families and caregivers of children with Hydranencephaly.
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