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whatUseek Directory Site Listings:
Family Village - Links to chat rooms, web sites and information about Von Hippel Lindau's disease.
Health Link USA - Links to information concerning Von Hippel Lindau Disease, its treatment, prevention, diagnosis, email groups, support groups and personal stories.
Ocular Manifestations of Von Hippel-Lindau Disease - An article by Emily Chew, M.D., National Eye Institute.
Radiology: Von Hippel Lindau Disease - Genetic, clinical and imaging features from the NIH.
The Human Gene Map - Description of the characteristics and the development of Von Hippel-Lindau disease.
Von Hippel-Lindau Disease - Information sheet on this disease compiled by NINDS, the National Institute of Neurological Disorders and Stroke.
Von Hippel-Lindau Family Alliance - Information about the organization and the disease. Includes FAQs, newsletter, handbook, meeting schedules and support group data.
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