Search The Directory The Web for Home > Health > Conditions and Diseases > Genetic Disorders > Personal_Pages New! Submit a site   whatUseek Collection Sites (submit a site ):   Give your site great placement in this category in as little as two business days!     whatUseek Directory Site Listings:   Alpha1 Antitrypsine Deficiency - One man's perspective and journey with A1AD and a list of links and other resources from the internet.   Ashly's Skeletal Dysplasia - A mom describes her daughters disorder which is thought to be a metabolic disease similar to mucopolysachharisdoses. Also links to other related sites.   Daniels Neurofibromatosis page - A child living with neurofibromatosis and optic glioma with links.   Justin's Journey - A personal story of a young man who was born Hurlers Syndrome. First in the world for Enzyme Replacement Therapy.   Maddy's Page - The story of Madison Wigglesworth who has hurler syndrome. Includes photo album and links to informative sites.   Strickler Family Homepage - A family page offering information about children born with Baller-Gerold syndrome and Omenn syndrome, a form of combined immune deficiency.   Taryn's World: About Switches - Personal page for kids and parents about genetic disorders, especially mannosidosis.   Treacher Collins Syndrome - A Personal View - Information, personal insight, discussion forum and the exclusive "TCS Around the World" feature.   Zara Fox - Read and learn about a little girl that has Coffin-Sirris Syndrome. Help build the largest human-edited directory on the web.   Submit a Site - Open Directory Project - Become an Editor

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