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Australian MPS & Related Diseases Society - Informs and support those affected, directly or indirectly by an mucopolysaccharide or related disease. Offers information regarding each disease, a discussion forum, a picture gallery, and news of events.
Genetic Information and Patient Services, Inc (GAPS) - Links to online definitions, information sites, and support groups for genetic disorders and birth defects.
Genetic Interest Group - Information about this UK umbrella group of organizations working together to improve services for people with genetic disorders. A notice board, education, services and links are provided.
Hereditary Disease Foundation - Information about this non profit organization, news, newsletters, recommended reading and contact details.
Lysosomal Diseases New Zealand - Information, support and advocacy for families affected by Lysosomal Storage Diseases, a group of rare genetic diseases.
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