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whatUseek Directory Site Listings:
Ectodermal Dysplasia Society - Information about the organization as well as the ED condition. Includes links, news articles and contact details.
NORD - Hypohidrotic Ectodermal Dysplasia - Offers synonyms, a general discussion and resources.
National Foundation for Ectodermal Dysplasia - ED organization based in North America offering information/advice to individuals and supporting scientific research. Includes a newsletter, publications, FAQs and a list of services.
The CaF Directory - Information about the ectodermal dysplasia disorders, the inheritance patterns and pre-natal diagnosing.
The Ectodermal Dysplasia Mailing List - Includes instructions on joining the list, FAQs and links to further resources.
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