Conditions and Diseases
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whatUseek Directory Site Listings:
- Information about this disorder, fund raising and links from The Batton Support and Research Trust.
Batten Disease Family Association
- Information about the BDFA, which provides supportive, informative, networking for the families, carers and professional giving care to children and adults with this disease in the United Kingdom.
Batten Disease Information Page
- Information sheet compiled by NINDS, the National Institute of Neurological Disorders and Stroke.
Batten Disease Support and Research Association
- BDSRA goals, support groups, local chapters, and resources for parents and families of Batten Disease patients.
Med Help International
- An article about batten disease, its history, a look at neuronal ceroid lipofuscinoses disorders, how they are inherited, statistics, causes, diagnosis, treatment and research.
- Details a boy's fight against Batten's Disease and dedication to promote awareness to help find a cure.
The Natey Foundation
- Information for parents and families of Battens victims.
seeAbility - Juvenile Battens Disease
- An in depth article on this disorder, includes the stages of the disease and the symptoms.
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