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whatUseek Directory Site Listings:
HLHS Information
- Treatment options for newborns with Hypoplastic Left Heart Syndrome. Includes questions to ask the hospital, surgeon, and insurance company.
Heart Defects Society of Windsor and Essex County
- Organization for persons affected by heart defects and their families
Heart Defects: Truncus Arteriosus Type 1
- Information, diagram, symptoms and medical treatment, from the Children's Heart Institute.
Heart Disease Online: HLHS
- Read about diagnosis, treatment options and surgery for hypoplastic left heart syndrome, discussed in simple language.
Hearts Of Hope
- Stories of children born with a very serious heart defect known as hypoplastic left heart syndrome (HLHS). Help in finding relevant information and links, especially in Australia.
Kawasaki Family Network
- Provides support and information about this disease to patients and their families, tracks current research in this area and has links to other helpful sites on KD.
March of Dimes
- Looks at congenital heart defects, explaining what it means, how the heart works, how they affect a child, causes, treatments, prenatal tests available, prevention and research.
MedicineNet
- Detailed look at congenital heart disease, such as the causes, symptoms, types and treatments.
Miami Children's Hospital
- Department of Cardiovascular Surgery provides a list of surgeries performed along with actual pictures and a lot of information about each. A form on-site to ask questions or give comments.
Minimal Invasive Congenital Heart Surgery
- An article about treating birth defects of the heart using this techniques.
Oregon Health Sciences University
- Congenital heart defects site with citations to other articles on the specialty.
Our Little Braveheart
- Jake was born with Tetralogy of Fallot. This is his story along with some pictures.
Palliative Operations
- The early staged operations for patients with this congenital heart defect, Tetralogy of Fallot, that lead up to the final correction surgery.
Persistent Pulmonary Hypertension of the Newborn
- A definition along with look at the diagnosis, treatment and the prognosis, from the University of Washington Academic Medical Center.
Resources from California State University
- Very extensive list of congenital heart diseases with links to sites dealing with that particular disease. Information to help parents and provide support.
The Children's Heart Society
- Information about this non-profit, volunteer based support group, dedicated to helping families affected by Congenital Heart Disease/Defects.
The Children's Hearts Fund
- Information about the organization dedicated to finding a cure for the deadly orphan disease protein losing enteropathy (PLE). Also covers events, FAQs and links to other resources.
Ventricular Septal Defect
- VSD is one of the commonest congenital heart defects, where there's a hole in the wall between the two lower chambers of the heart. An article from About.com with Richard N. Fogoros.
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